Some topics I cover
Saturday, December 25, 2010
It's Christmas morning! I'm so excited. Yes, I'm 20 and still love Christmas morning. I'll always be a kid at heart.
I had another post ready but it just crushed the Christmas mood so it will have to wait until later.
I hope everyone has a very, Merry Christmas with your friends and families!
I hope your Christmas was just as fantastic as mine was, filled with the story of Christ, quality time with family and of course, great food.
On a less happy note...
Warning, brutal honesty up ahead. To keep your Christmas cheer intact, read later!
So, I'm frustrated with myself. I fluctuate on being compliant and not. Current status: bad Annie. But my Christmas present to myself is compliance.
It's a gift to myself because if I'm compliant now, I'll still have time for things later in life when I'll really want to still be around. And also for the now. Right now, I sound terrible, coughing too often for my personal comfort. I can barely play soccer. I can hardly sing. I can't lie down without people asking if I'm ok because I'm coughing so much. NOT OK WITH ME. Yet, I did this to myself. So, with roughly 20 days until my next doctor's appointment, I'm challenging myself to be 100% compliant. Not only in meds but also in fitness. I may not run 2 miles every day (although I am still really proud of myself from that day in Dallas), I need to run some and walk some. Mom also got Zumba for the Wii for Christmas and I tried it out with her today. It's really hard, but has great potential to be a serious workout. In an extension of my compliance, I've also upped my Vest time. Instead of 15 minutes once a day (which is surprisingly low), I'm doing 30 minutes at night and 15 minutes in the morning. This is not a suggestion, but an executive decision on my part to change my routine. It's set in stone as far as my compliance goes.
This morning was rough with the pills. Breakfast took a little longer than I anticipated to be ready, so I felt very sick for a few minutes with a handful of pills on an empty stomach. With a few crackers, it was remedied.
I can't decide whether this is going to be difficult or not. So far, it's not really been that hard, but it's been a mind of matter situation. It's so much easier to pop a select few pills and walk away than it is to wait and take them all, but I am getting my mind over the urge to just walk away. So far, so good. I've been 100% compliant so far and I fully intend to keep it that way. I've thought about getting someone to keep me accountable, but knowing myself pretty well (ha!), I know that the person gently reminding me or asking if I've taken everything, every day, would drive me up a wall and I would probably give up and be angry/frustrated about it. So it's just me holding myself accountable to myself and to this blog and to my own personal records.
I can do this.
My goal is to extend the compliant nature past my doctor's appointment of course, and hoping that by that time, things will simply be habit once again and I won't have to do a daily battle with myself!
Finishing up my 30 minutes of evening Vest, about do to my evening Cayston, then making myself a water, taking my evening pills, and then I'm off to bed. I've had a very, Merry Christmas and I hope you have too!
Wednesday, December 22, 2010
I apologize for my MIA tendencies lately. However, when a lot of things come up at once, my blogging hobby gets put on hold.
So two weekends ago, I went to Dallas with almost 30 of my sorority sisters, just because! It was a blast. Instead of getting a hotel, 5 of us stayed at a mom's apartment and that was no doubt even more fun than a hotel would have been. Here's a picture to share!
The 5 of us piled in a Honda Fit and hit the road. Between the Tahoe, ice skating, shopping, that crazy mechanical dog that laughs, and my sisters, it was one of the best weekends ever.
And, be proud. I didn't bring my Vest, but Saturday morning me and two of my friends ran 2 miles. Yeah, you read that right. 2 MILES. I walked a little bit (a few seconds) of mile #1 but mile #2 was killer. Especially the uphill section at the end that I was unaware of until we got there!! Haha. I was really proud of myself though, and really appreciated my friends who ran it with me. I couldn't have done it without them.
So it's Christmas break! Yay! I'm home again and with my family. The brother/sisinlaw/niece from Austin are here for several days. It's been really great to see them and my precious niece! Yeah, it's picture time again.
Isn't she adorable?! *sigh* she has my heart.
That's about all that I can think of that's going on right now. The next several days will be spent with family and I'm pretty excited about it. My puppy is so tired though. She's working so hard to entertain the babies and avoid the big dogs while chasing the little dog. She's looked like this most of the time:
Oh, and with this little guy, we've hit a whole new level of fun: he's a pro at walking now. He's walking good, standing up by himself, chatty, and happy. He has my heart too, that precious little boy.
Oh, one more thing, I got an executive position in Sigma Kappa and I'm thrilled about it! I've been preparing to go back to school so I can perform my duties well. I just wanted to add that to the blog since it's about my life in general! :]
Until next time, have a very Merry Christmas, a Happy Hanukkah, and a fantastic winter holiday!!
Monday, December 13, 2010
Wednesday, December 8, 2010
Being a college student can be hard sometimes. Being a college student with a serious illness makes things even more difficult. At birth, I was diagnosed with a disease called cystic fibrosis (CF), a genetic life-shortening disease that makes simple body processes, like breathing or digesting food, more complicated. However, with many advancements made in technology and medicine, the quality and length of life for people with this disease has dramatically improved as I’ve gotten older. Now, just shy of 20, I’m away at college and thriving in all aspects of life.
Life with CF can be frustrating at times. Between the number of pills, the breathing treatments, and chest percussion therapy, a lot of time and thought goes into maintaining my health. Because of the rigorous daily routine, going to college is a challenge for people with CF. We must have excellent time management skills to be able to balance school, health, and personal life. Our personal choices are based around our health instead of what might be popular. And while making friends hasn’t been affected, letting those new friends behind my protective barrier and allowing them to see this vulnerable side of me is hard to do. I went to a college away from some of my closest friends, a decision that left me outside my comfort zone. I was nervous about branching out and meeting new people, afraid of their reaction when they learned of my illness.
At the suggestion of my family, and after some persuading, I decided to go through formal recruitment. Did I think I would actually join a sorority? Not a chance. I did not think of myself as a “sorority girl.” However, once preference day came, I knew my heart was already with Sigma Kappa. After just in the few days of recruitment, I could tell that these girls were new friends I could trust.
With these newfound sisters also came a newfound fear: telling them my biggest secret. I have been closed off my entire life about CF because I never wanted to be labeled. I was an athlete, a singer, a Christian, a friend, a teammate, but never the “sick girl.” I was determined to not let CF label me in college, especially not with my new sisters. The last thing I wanted was for them to look at me and see “cystic fibrosis.”
At the end of my freshman year, I wrote a letter to our executive council asking if we could take on cystic fibrosis as a local philanthropy -- my first step at trusting my sisters with my secret. Our President, Sarah Carroll, said that my sisters would support me in any fundraising I did. At the start of my sophomore year, I knew the Great Strides 5K for cystic fibrosis was coming up soon and I decided it was time to open up and trust my sisters with the thing I’m most afraid of sharing. I stood up in chapter meeting to explain the race and why it was important to me personally. After my announcement, there was only positive support. My sisters in Sigma Kappa stayed true to me, as I knew in my heart they always would. The day of the race, my sisters drove an hour to walk with and support me. Those that couldn’t come donated money to the CF Foundation. My sisters in Sigma Kappa have just started a long journey with me in dealing with my life-long battle with CF, but I know that when things get tough, my sisters will always be there. I couldn’t do it without them.
Tuesday, December 7, 2010
Wednesday, December 1, 2010
Friday, November 26, 2010
Tuesday, November 23, 2010
Monday, November 22, 2010
Saturday, November 20, 2010
Monday, November 15, 2010
My two brothers with their kids!
Precious, precious niece. I think they look so much alike in this picture.
Wednesday, November 10, 2010
Wednesday, November 3, 2010
So my big surprise (that AT&T ruined the surprise part partially) that my parents got me was an iPhone 4!! I love it so much. I am the last person in the family to be able to play Words with Friends on my own device! Before, I would just help Mom.
Here's what I've got so far:
Sunday, October 31, 2010
Friday, October 29, 2010
Today is my 20th birthday!! I'm really excited about it! It's a good end to a rough week! I'll be spending it with my sorority at our fall party! I'll celebrate with family/friends from home on Saturday.
Tuesday, October 26, 2010
Saturday, October 23, 2010
Friday, October 22, 2010
Monday, October 18, 2010
Sunday, October 17, 2010
Friday, October 15, 2010
Saturday, October 9, 2010
Wednesday, October 6, 2010
Tuesday, October 5, 2010
Sunday, October 3, 2010
Saturday, October 2, 2010
Monday, September 27, 2010
Sunday, September 26, 2010
My mind has been going 1000 different ways at once all week. I still don't have much of anything to post about to take up a whole post, so I'll carry on about a few different things. I'll even number them for pure entertainment.
- Guys rush is over!! No more late nights cooking food in mass quantities. Thank goodness.
- I found out I cook a mean sheep dip. Don't google "sheep dip" because what I cooked is not what you will find. What sheep dip is in my family = meaty cheese dip in everyone else's. No one is completely sure where our term for it came, but it still stands.
- I'm tired of people pointing out that I cough. Thanks, but I'm pretty well aware of it. Mind your own business.
- Tonight is Sunday Night Soccer again! My legs hurt just thinking about it. It's gonna be fun, but I still won't be able to hang with the guys for very long. I get so winded...
- Doctor's appointment quickly approaching... really nervous about that. I know I always say I have a bad feeling about the PFT results, but I do this time too. aaaahhhhhhhh!
- I studied way too long for a test I didn't do nearly as good on as I had hoped. *frustrated*
- Went back to my college-town church today and was reminded of how much I love it!
- Great Strides is Oct. 9. This evening at meeting I'm going to get up the courage to ask my sorority to walk it with me. I'm terrified.
Sunday, September 19, 2010
Saturday, September 18, 2010
Thursday, September 16, 2010
Sunday, September 12, 2010
Sunday, September 5, 2010
Saturday, September 4, 2010
Tuesday, August 31, 2010
Monday, August 30, 2010
Friday, August 27, 2010
Thanks to Feedjit, I notice that many of the searches that lead people to my blog consists of the word "Cayston". Since it's a new drug, I thought I would post a non-sponsored, completely my own advice walk-through of how I clean and use Cayston.
It starts off with the cleaning and then moves to the usage. Sorry, it's late, so I posted them backwards. You'll live. Just scroll down if you want to read the usage part first. It's labelled with a big, fat title.
Disclaimer: This is information I have either gotten from the CFF website, from the information sent to me with Cayston, or my own variations. It is not official medical advice, just something I thought might help people who were as lost as I was when I first started Cayston.
Mom's Disclaimer: Sorry if you see any sort of messiness or clutter. Pretend you didn't see it and move on. Thanks!
CLEANING!!!!First, you need to get some dishwashing detergent that is *NOT* antibacterial!
For cleaning, this is the setting and the actors: dirty Cayston pieces, the detergent, and the Ziplock containers they sent with the Cayston stuff for the first time.
With warm/hot water, we rinse out all of the non-metal Cayston pieces...
....and place them in the Ziplock container, which is filled with detergent and warm water.
I usually separate the grey piece to make sure I get it all washed out. (WARNING- if you have a sink with two halves, use the side without the open drain! If not, cover it up... you don't want those pieces falling in!)
...and drop in the same container as the body.
Rinse both the blue rubber piece...
.... and the mouthpiece thoroughly, getting all of the openings too.
And in they go with the other plastic pieces.
Close the lid.... (but don't turn it all the way, because it's really hard to get back off)
...and shake it up!! Warning, water will go everywhere.
Rinse the head in a slower stream of warm water... both sides. (Note: this is also done immediately after finishing a Cayston dose)
Since I also washed the containers while washing the pieces, I set them out to dry. (For each paper towel piece you see, there is a second one under it, giving it a double-layer)
In the front of the baby bottle cleaner, there is a measuring cup. It took me WAAY too long to find it on my own, sadly.
Here is the gut of the baby bottle cleaner.
This is where the main piece will hang, using the hinge of the piece. It will only fit 3.
Here's the top rack of the baby bottle cleaner. This is where everything else goes. I have mastered fitting in 3 Cayston sets in here without anything overlapping. Observe:
First goes in the head, which cannot lie flat. However, they fit perfectly around the legs of the middle knob.
Next comes the assembled top piece, which fits between each head, making three points on a triangle.
The rubbed blue pieces, which I lay "face" down, will cozy up to the grey tops nicely.
And that leaves plenty of room for the mouth pieces. Perfection!
So now we put the gut of the baby bottle cleaner back on the metal pan
The rack on top of that
And then the lid!
Now, we have the one solitary button on this machine. What to do?
This is how I lay them all out. Notice I open the grey pieces because the white part retains water. The blue rubber part doesn't air out well, so I prop it up on the mouth pieces and it does much better. Can you tell I'm an engineer's daughter?
I also prop the lid up so that it can finish drying too.
First, we need to assemble the pieces. Take the large plastic one and open it.
The head goes in that funny looking side as such. It kinda snaps in.
The blue piece goes in opposite the head.
Attach the mouth piece
This is where it connects to the power source/machine. It has a hinge and GENTLY snap it on. Mine is already broken in two places, but still works just fine.
This is the almost ready Cayston piece
The battery compartment is in the grey area. But if you don't want to use batteries...
This is where the hole is for the other end of the wall adapter. It comes with the Cayston stuff as well.
This end is for the hook up of the grey piece we already attached to the mouth piece a few pictures back.
We need that cute glass bottle again! Take the aluminum tab, pull down, and start pulling around to get it completely off. It breaks occasionally and can be a pain, but it needs to come completely off.
It will look like this!
Empty the ampule into the glass bottle, put the grey stopper back on, and SHAKE! It needs to be clear to inhale properly.
Pour it into the top of the mouth piece. It will only be about this much.
Put the grey piece on and turn to make sure it is closed.
Press the solitary button and hold for a few seconds. It will beep...
....and this screen will appear after the PARI screen. This means Cayston is going!
No talking! It's very short so if you need to take it out of your mouth, press the lonely button and hold to stop the treatment. It won't be happy with you, but it works. Like that I'm in the kitchen still?
It will beep 2 times and show you this screen when it's done. (Sorry it's hard to see) It lasts around 1 1/2 - 2 minutes. My piece will sometimes "click" a few times right before it's done, but I'm not sure if that's everyone, but if you hear that noise, don't panic!