Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Luke 12:25-26

Saturday, December 25, 2010

Merry Christmas!

Merry Christmas everyone!! :]

It's Christmas morning! I'm so excited. Yes, I'm 20 and still love Christmas morning. I'll always be a kid at heart.

I had another post ready but it just crushed the Christmas mood so it will have to wait until later.

I hope everyone has a very, Merry Christmas with your friends and families!


A Christmas gift to myself

Merry Christmas again everyone!! :]

I hope your Christmas was just as fantastic as mine was, filled with the story of Christ, quality time with family and of course, great food.

On a less happy note...
Warning, brutal honesty up ahead. To keep your Christmas cheer intact, read later!
So, I'm frustrated with myself. I fluctuate on being compliant and not. Current status: bad Annie. But my Christmas present to myself is compliance.

It's a gift to myself because if I'm compliant now, I'll still have time for things later in life when I'll really want to still be around. And also for the now. Right now, I sound terrible, coughing too often for my personal comfort. I can barely play soccer. I can hardly sing. I can't lie down without people asking if I'm ok because I'm coughing so much. NOT OK WITH ME. Yet, I did this to myself. So, with roughly 20 days until my next doctor's appointment, I'm challenging myself to be 100% compliant. Not only in meds but also in fitness. I may not run 2 miles every day (although I am still really proud of myself from that day in Dallas), I need to run some and walk some. Mom also got Zumba for the Wii for Christmas and I tried it out with her today. It's really hard, but has great potential to be a serious workout. In an extension of my compliance, I've also upped my Vest time. Instead of 15 minutes once a day (which is surprisingly low), I'm doing 30 minutes at night and 15 minutes in the morning. This is not a suggestion, but an executive decision on my part to change my routine. It's set in stone as far as my compliance goes.

This morning was rough with the pills. Breakfast took a little longer than I anticipated to be ready, so I felt very sick for a few minutes with a handful of pills on an empty stomach. With a few crackers, it was remedied.

I can't decide whether this is going to be difficult or not. So far, it's not really been that hard, but it's been a mind of matter situation. It's so much easier to pop a select few pills and walk away than it is to wait and take them all, but I am getting my mind over the urge to just walk away. So far, so good. I've been 100% compliant so far and I fully intend to keep it that way. I've thought about getting someone to keep me accountable, but knowing myself pretty well (ha!), I know that the person gently reminding me or asking if I've taken everything, every day, would drive me up a wall and I would probably give up and be angry/frustrated about it. So it's just me holding myself accountable to myself and to this blog and to my own personal records.

I can do this.

My goal is to extend the compliant nature past my doctor's appointment of course, and hoping that by that time, things will simply be habit once again and I won't have to do a daily battle with myself!

Finishing up my 30 minutes of evening Vest, about do to my evening Cayston, then making myself a water, taking my evening pills, and then I'm off to bed. I've had a very, Merry Christmas and I hope you have too!


Wednesday, December 22, 2010

Long time no see!

Hey blog readers,

I apologize for my MIA tendencies lately. However, when a lot of things come up at once, my blogging hobby gets put on hold.

So two weekends ago, I went to Dallas with almost 30 of my sorority sisters, just because! It was a blast. Instead of getting a hotel, 5 of us stayed at a mom's apartment and that was no doubt even more fun than a hotel would have been. Here's a picture to share!

The 5 of us piled in a Honda Fit and hit the road. Between the Tahoe, ice skating, shopping, that crazy mechanical dog that laughs, and my sisters, it was one of the best weekends ever.

And, be proud. I didn't bring my Vest, but Saturday morning me and two of my friends ran 2 miles. Yeah, you read that right. 2 MILES. I walked a little bit (a few seconds) of mile #1 but mile #2 was killer. Especially the uphill section at the end that I was unaware of until we got there!! Haha. I was really proud of myself though, and really appreciated my friends who ran it with me. I couldn't have done it without them.

So it's Christmas break! Yay! I'm home again and with my family. The brother/sisinlaw/niece from Austin are here for several days. It's been really great to see them and my precious niece! Yeah, it's picture time again.

Isn't she adorable?! *sigh* she has my heart.

That's about all that I can think of that's going on right now. The next several days will be spent with family and I'm pretty excited about it. My puppy is so tired though. She's working so hard to entertain the babies and avoid the big dogs while chasing the little dog. She's looked like this most of the time:

Oh, and with this little guy, we've hit a whole new level of fun: he's a pro at walking now. He's walking good, standing up by himself, chatty, and happy. He has my heart too, that precious little boy.

Oh, one more thing, I got an executive position in Sigma Kappa and I'm thrilled about it! I've been preparing to go back to school so I can perform my duties well. I just wanted to add that to the blog since it's about my life in general! :]

Until next time, have a very Merry Christmas, a Happy Hanukkah, and a fantastic winter holiday!!


Monday, December 13, 2010

New post soon!

As usual, I'm busy with school! But I had a great weekend with my Sigma Kappa sisters and I have a post about it coming very soon! Promise!

But first, I have a lab report due at midnight tonight. Sorry, that takes priority.


Wednesday, December 8, 2010

I'm Published!

I had been asked by someone who works at the Sigma Kappa Triangle (my sorority's national magazine) to write an article about having CF and how being a Sigma Kappa has helped! The Autumn edition of the magazine came out today and my article was on page 7!
Somebody to Lean On
Sigma Kappa with chronic illness finds support in sisters

Being a college student can be hard sometimes. Being a college student with a serious illness makes things even more difficult. At birth, I was diagnosed with a disease called cystic fibrosis (CF), a genetic life-shortening disease that makes simple body processes, like breathing or digesting food, more complicated. However, with many advancements made in technology and medicine, the quality and length of life for people with this disease has dramatically improved as I’ve gotten older. Now, just shy of 20, I’m away at college and thriving in all aspects of life.

Life with CF can be frustrating at times. Between the number of pills, the breathing treatments, and chest percussion therapy, a lot of time and thought goes into maintaining my health. Because of the rigorous daily routine, going to college is a challenge for people with CF. We must have excellent time management skills to be able to balance school, health, and personal life. Our personal choices are based around our health instead of what might be popular. And while making friends hasn’t been affected, letting those new friends behind my protective barrier and allowing them to see this vulnerable side of me is hard to do. I went to a college away from some of my closest friends, a decision that left me outside my comfort zone. I was nervous about branching out and meeting new people, afraid of their reaction when they learned of my illness.

At the suggestion of my family, and after some persuading, I decided to go through formal recruitment. Did I think I would actually join a sorority? Not a chance. I did not think of myself as a “sorority girl.” However, once preference day came, I knew my heart was already with Sigma Kappa. After just in the few days of recruitment, I could tell that these girls were new friends I could trust.

With these newfound sisters also came a newfound fear: telling them my biggest secret. I have been closed off my entire life about CF because I never wanted to be labeled. I was an athlete, a singer, a Christian, a friend, a teammate, but never the “sick girl.” I was determined to not let CF label me in college, especially not with my new sisters. The last thing I wanted was for them to look at me and see “cystic fibrosis.”

At the end of my freshman year, I wrote a letter to our executive council asking if we could take on cystic fibrosis as a local philanthropy -- my first step at trusting my sisters with my secret. Our President, Sarah Carroll, said that my sisters would support me in any fundraising I did. At the start of my sophomore year, I knew the Great Strides 5K for cystic fibrosis was coming up soon and I decided it was time to open up and trust my sisters with the thing I’m most afraid of sharing. I stood up in chapter meeting to explain the race and why it was important to me personally. After my announcement, there was only positive support. My sisters in Sigma Kappa stayed true to me, as I knew in my heart they always would. The day of the race, my sisters drove an hour to walk with and support me. Those that couldn’t come donated money to the CF Foundation. My sisters in Sigma Kappa have just started a long journey with me in dealing with my life-long battle with CF, but I know that when things get tough, my sisters will always be there. I couldn’t do it without them.

Tuesday, December 7, 2010

Video of hope

This is a great video about Vertex, the new drugs in the CF pipeline. This guy explains how the drugs work on a level that everyone can understand it. Please take a few minutes to watch it and hear the great news about the future for CF drugs!


Wednesday, December 1, 2010

Back in the swing of things

Classes started back up today, hello Winter Quarter. You're going to be just as difficult as fall quarter, if not more so. I enjoyed my first day of classes though. My physics professor is Russian, but after about 5 minutes, I adjusted to his accent and understood most of what he said. Walking back into my anatomy class was same ol' same ol'. Same people, same seat, same professor, same classroom, etc. The difference is the attitude my group of friends is taking about this class. We all made the same grade and plan to all make a better grade this quarter!!

I did some decorating in my room today! I hung up 2 collages of pictures, some curtains across my closet opening, and got a little more organized. Having guests in the morning... ;]

I have a cold! No!! It takes me awhile to fall asleep at night due to the coughing, but at least it's very sound sleep. I took a nap today that was supposed to be 30 minutes and turned into 4 hours. Whoops. I needed the sleep though. I just picked up some Dimetapp Nightime cold & congestion hoping that it helps me get to sleep easier and some Advil for my throat. I have also had NO Dr. Pepper in 2 days now. I've been drinking only water and sweat tea (mostly water) hoping it helps my throat/vocal chords. Trying not to talk too much either.

Dear Cayston users, consider joining the ShAIR network! It's easy, it's free, and it helps the CF community! Shoot an email to this address ( info@shairnetwork.com) or call (1-877-742-4770) and they will send you a simple form. Fill it out, fax/mail it back, and they will set up a phone interview. I really enjoyed my phone interview. If you want anymore information on the ShAIR network, email me or email the address I just gave you or call their number! Do it!

Off to wash dishes.. or eat more. Or both. We'll see. :]

Happy December!