From Monday, the count is: 9 days until college life. Wowza. That's.... soon.
So I started that running routine and, except for this weekend out of town, it has worked well. I get up ~7:10, do treatment, and try to be out of the door sometime soon after 7:30. I have been taking two laps around my neighborhood running the pace of [3 minutes running, 1 minute casual walking, 1 minute brisk-power walking, repeat]. There is a small hill in my neighborhood. It's small enough that it doesn't intimidate, but steep enough you FEEL it.... oh man. And I start getting weary near the end of lap 2. But I have to keep going. I keep encouraging myself. I keep reminding myself that CF doesn't quit, doesn't take a day off. CF wants nothing more than to win me over, and I take pride in making my goal to stand in the way of some[thing] else's goal. So I run in the way of CF's goal and I keep running. If that makes sense. It's like half symbolism and half real. Haha!
In an upcoming post, assuming nothing drastic happens before then, I plan to kinda give a brief overview on my life: the part with CF, the part without, my family, my sport, my meds, everything. Just lay it all out there so there is no confusion at all about my situation.
One last thing. Hey, CF, you're not going to win this. Are you listening? I am stronger and more determined than you can ever be. You've made me this way, and for this I thank you. However, I don't need you. Please, just try and stop me from living my life. You already have and so far it hasn't worked. Even with a PICC I played physical soccer for a very important game. I push through even when others think I should quit, because of you. I'm going on to be great and you will be nothing but backgruond noise. I'm not afraid of you. Try me. I don't back down from fights, and this is no exception. The more you bother, frustrate, hurt, and try to take over me, the harder I fight back. So c'mon. Bring it. Because I'll bring it right back, 10 fold. You. Will. NOT. Win.
-Andrea
Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Luke 12:25-26
Some topics I cover
CF
Carter
Cayston
ENT
ER
FEV1
God
Great Strides
Husband
Kiarda
Louis
PFTs
PICC line
RunSickboyRun
ShAIR
Sigma Kappa
TOBI
Vertex
Vest
Zoe
allergy
article
blogs
body image
church
college
compliance
coughing
crawfish
depressed
diet
doctor
dog
embarrassing story
enzymes
exercise
family
fire alarm
food
friends
fundraising
future
genes
goals
grades
graduation
gym
hemoptysis
home
hope
hormones
hospital
kids
lab
lifespan
lonely
lung function
lung pain
lungs
medicines
message to CF
money
pain
pictures
pneumonia
running
sick
singing
sinus surgery
sinuses
smoking
soccer
stress
transplant
treatment
video
walk-through
weight
workout
Monday, August 24, 2009
And the countdown begins....
Wednesday, August 19, 2009
"Sign Danger!"

So I keep up with a few other blogs of people with CF and 2 of them stress the importance of working out daily. When I say stress, I mean glaring-in-your-face-with-a-florescent-sign level of stressing. After ~13 years of soccer and 6 years of that being premier/varsity level, I'm ENJOYING my break. Premier and varsity level... they work ya hard. And then being a goalie... basically I did everything the field players did (the running, leg work-outs, etc) AND had a goalie training (more running, arm, leg, core workouts, DRILLS DRILLS DRILLS, endurance training, etc.). Being a goalie is hard work, people, trust me. It's not for the fat kid who can't run like everyone likes to believe.
These people who are writing the blogs about the importance of working out/running when you are a 'cystic' are later in life than I am and probably wish they had started this earlier. Ok, here's where we put, as my French teacher called it, a "Sign Danger". A Sign Danger is usually placed when the French grammar is different or needs special attention. In this case, the fact that I'm learning this piece of advice from the experience of others older than myself needs special attention. When we drew Sign Dangers, she would tell us to use many colours. That's a Microsoft Paint drawing of kinda what some of my Sign Dangers from French looked like. I owned many different highlighters.
So what does this mean? I have 2 weeks left before I leave for college. When I get to college, I'm living VERY close to the intermurals center. Will I make up excuses? Or will I get up early every morning and go running before my 9:30 or 10:00 am classes? More importantly, will I start running in the morning NOW to work up a habit as I get to college? If I don't, there will be an even larger Sign Danger next to my PFT results because I didn't maintain my health. So, tomorrow, I start running again. Darn.
-Andrea
Sunday, August 16, 2009
Saturday on the Lake
I spent a large chunk of Saturday on a lake with my friend Gaelin, my friend Alissa (see Sci-port adventure) and Alissa's grandfather. When riding in a fast moving boat, my favourite place to sit in near the bow (the front, for you land creatures). When hitting a wave, it gives the same senation as sitting in the very back of a school bus: a bumpy ride. But there's something I love more than feeling like I might be thrown from the boat at the next wave: I love the wind in my face. I breathe the best at these moments, when oxygen is not only being inhaled but practically forced into my respitory system. Those times when it's actually harder to exhale than inhale. It's relaxing and I feel CF free for those few moments. Bliss.
Well, the lake was bliss until I was floating in the water downwind of 2 people who decided to smoke IN the water!? I'm blunt when it comes to that. Kill yourself, but don't take me with you. I've got enough lung problems without your help. Thanks.
But other than that, the lake was a success. Today, I'm VERY sore from my master tubing abilities, but it was very worth it. Now, I just wait for Sept. 2.
.................
*Checks calender*
This is going to take a while....
-Andrea
Well, the lake was bliss until I was floating in the water downwind of 2 people who decided to smoke IN the water!? I'm blunt when it comes to that. Kill yourself, but don't take me with you. I've got enough lung problems without your help. Thanks.
But other than that, the lake was a success. Today, I'm VERY sore from my master tubing abilities, but it was very worth it. Now, I just wait for Sept. 2.
.................
*Checks calender*
This is going to take a while....
-Andrea
Thursday, August 13, 2009
Sci-port!
I love Sci-port. And I went today with two of my Chem 2 lab partners. How geeky, right? Oh it was awesome. [Link to Sci-port]
I went to gift shop afterwards and bought some of that Galaxy Slime. You know, that putty stuff that feels like it's a liquid but is more like the movie character Flubber? It's great. Here are the pictures from that adventure.

A really neat camera. That's me with my aviators on.

A face morpher thing. That's me

My friend Alissa, morphed

And Caleb without a body. Whoops. The army might not want him anymore.
As you can see, we had fun. :] Sci-port is the place.
-Andrea
I went to gift shop afterwards and bought some of that Galaxy Slime. You know, that putty stuff that feels like it's a liquid but is more like the movie character Flubber? It's great. Here are the pictures from that adventure.

A really neat camera. That's me with my aviators on.

A face morpher thing. That's me

My friend Alissa, morphed

And Caleb without a body. Whoops. The army might not want him anymore.
As you can see, we had fun. :] Sci-port is the place.
-Andrea
Sunday, August 9, 2009
Can I be negative for just a sec?
It's not actually that negative, but most of my friends/family will find it that way. I started thinking: I'm almost 19. Double that and I'm at 38. Today the current life expectancy for people with CF is ~35 [Ref.][Ref.][Ref.][Ref.]. That means I'm in my "mid-life"! Shouldn't I buy some fancy sports car and doing crazy and wild things??
Sorry for thinking like that but for me, it's a brutal truth. No, I'm not counting down the days to my 35th birthday, but I do think realistically at the things my friends/family don't want to even let cross their minds. **SPOILER** Wake up people. Odds are pretty good that if a car crash doesn't take me, CF will. And it won't look at my kids when I'm older and think "Oh, what cute kids. I should let her live longer." And then CF just sits in the backseat for 20+ more years. No. Sorry. That's not how this works.
No, I'm not pondering on morbid thoughts. No, it really doesn't bother me. Sure, sometimes but isn't that normal?? But it doesn't right now. It's just something I think about because it's not like I can hide from it. I actually found it slightly amusing that I'm in my "mid-life crisis" about 20 years before everyone else. haha.
Ok. No more thoughts like that for the blog tonight. Sorry for being a debbie downer. lol
-Andrea
Sorry for thinking like that but for me, it's a brutal truth. No, I'm not counting down the days to my 35th birthday, but I do think realistically at the things my friends/family don't want to even let cross their minds. **SPOILER** Wake up people. Odds are pretty good that if a car crash doesn't take me, CF will. And it won't look at my kids when I'm older and think "Oh, what cute kids. I should let her live longer." And then CF just sits in the backseat for 20+ more years. No. Sorry. That's not how this works.
No, I'm not pondering on morbid thoughts. No, it really doesn't bother me. Sure, sometimes but isn't that normal?? But it doesn't right now. It's just something I think about because it's not like I can hide from it. I actually found it slightly amusing that I'm in my "mid-life crisis" about 20 years before everyone else. haha.
Ok. No more thoughts like that for the blog tonight. Sorry for being a debbie downer. lol
-Andrea
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