I apologize for being absent for about a month and a half. I either never knew what to say or didn't have time to type or just didn't feel like sitting at my computer any longer. I don't even really think I know what to say now, but here I am.
I had my doctor's appointment on Oct. 19. It went alright. My weight was up about 3lbs so that was fantastic. I go in for PFTs and after one blow, the machine breaks. So to be honest, I have no idea what my PFTs are right now. That makes me a little nervous, but since my first try was around my baseline, they didn't fret about numbers and sent me on my way. *whew*.
I think ultimately I will phase the blog out of my life for future employment reasons. I don't want it to negatively affect if/where I get a job. My thoughts and feeling about my health/disease are becoming more solid and detailed and I don't feel like they all need to be posted here. On that same note, I don't feel like my personal life should be available for all to read either, so I don't feel the need to post about it either. It's the same reason my facebook page is more barren than it used to be. Those who need to be informed, or who I feel should be informed, about my life will be. Everyone else will find out through the ever-informative grapevine.
I love my blog, don't get me wrong. I'm actually really proud of it. However, I just don't have the "bug" to keep up with it. I wish I did, but I have so many other things going on that are important to me or are demanding of me that typing up my feelings and thoughts and memories just aren't in the top tier of priorities. I would much rather be spending time with the people who are important to me.
I do have one more thing to write about, and I may be back from time to time, who knows. I wanted to write on the experience of moving in with 3 girls I did not know and trying to slowly introduce them to and explain to them my health "stuff" without being blunt or awkward or weird. It's an art. And while I have no real advice on how I did it, somehow it worked. I think the funniest moment was when one night I was doing the Vest and one of my roommates realized what I was doing. She knocked on my door and I shakily yelled "come in!" While she stood in my doorway she made a comment that made me laugh: "I want to touch you!" She then proceeded to dive onto my bed to feel the Vest and how it shook me. My other roommate then realized what was going on and ran into my room too saying "me too!!" and came to feel the Vest as well. After a few seconds of that, and some time of them begging me to talk while being shaken, they left. Still regularly, that first roommate likes to come in my room while I do the Vest and begs me to talk to her. I think overall my roommates have acclimated to me having multiple machines in my room and a million meds to take quite well, thankfully. I was really nervous at first, but alls well.
It's final week so I may or may not post again soon. I'm really not sure to be honest. We'll see.
-Andrea
2 comments:
That's great about your roomies!!
I hear you about blogging. I made the family blog a private blog not only to keep random people out of our family life, but to protect Kiarda (and any future kiddos) as she (they) get older. I'm sure she doesn't want her bathtub pictures floating around the interwebz when she's 20, but when it's only people we actually know...well, that's fair game. :P
When I started my LJ SEVEN years ago (!!!) I never would have thought that I would/could keep it going. I have never been good with diaries and journals and such, but for some reason, blogging works for me. I find it therapeutic. I thin I also like having an (albeit small) audience, because then it's not just for ME.
I do enjoy your blog, so if you keep it going, I'll keep reading! Sometimes people change course mid-blog, and rather than it being your personal experiences, could you still provide positive coping strategies and such for living with CF? I think something like that could be very beneficial to have "out there."
Hey Annie, I get it but I will miss your postings. That said, I will expect some phone calls and visits that keep me up with the important stuff that 's going on with you. After all, I am your "other" mother. Maybe journaling rather than blogging is something you might want to do. Right now you think you will remember all the events and experiences you are having now but somehow they find some distant part of the brain and hide from you. Study good and pick carefully those you want to share things that are important to you. I am very proud of what you are accomplishing with your life and the way you face CF and say "back off", I am winning this battle.xoxox's to my "other" child.
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