In reference to the post below, I still haven't seen the results. It's been almost a year. I still remember that day-- I curled up on the floor of my apartment and cried. I should have remembered that science takes forever. Not their fault, I understand that. I just should have known to not count those chickens just yet.
Hello world! I don't post much for a few reasons but primarily because I grew tired of it. Occasionally, like today, I'll decide the posting isn't sure a tough thing to do. It's nice to be heard every so often. I do have a second "blog" for my personal thoughts and feelings. Things that don't need to be shared with the world around me.
I also don't post as often because a lot has changed in 10 months (shocking, right??). I moved home in June of 2012 and finished out college commuting back to my college town. I also took a few classes from home and held an internship at a local gym for the final two quarters of college. Then, on Nov. 17, 2012, I graduated college early by two quarters. *high fives all around* Backing that time-table up about a month, I also started a "big girl job" in mid-October. After I graduated, I went on a graduation cruise with my mom, and began working full time (8-5, M-F) the Monday I came back from my cruise. Very exciting, very busy.
I also shifted away from the blogging world with my new job because, like a fellow blogger (Unknown Cystic), I don't want to put my career in jeopardy just because of my health. The internet is an incredible thing, but has the potential to ruin lives.
I also recently turned down the chance to be a local "face of CF" as a part of a really great fundraiser locally. I've supported and attended the gala they host when I'm able to, but this would have made me the key speaker and face in the media. I was all for it until I was employed. I'm sorry, but I just can't. I was a recent speaker with my mom on the Mother/Daughter Perspective of CF for local CF families hosted by my clinic. It was a great event and we had fun doing it. It's on YouTube.
Speaking of YouTube, my work did a Harlem Shake video. We're the first in our industry to do one and the other companies got called out by observers. It was tons of fun.
Ironically, after noting that I would like to keep my job despite my genes, I'm home sick today. It's the first full day I've taken off for feeling UGH. Remember all that belly pain I've had since late elementary school? It still haunts me. I actually had a recent colonoscopy to see what was wrong. Verdict? "You have a normal colon. Nothing is wrong with you." WRONG. Just because we can't see or determine the problem does not mean nothing is wrong. The highly respected doctor who performed the colonoscopy suggested it might be my diet. I mentioned this to my CF doctor who scoffed. "Doubtful." Still back on square one, in pain and still "nothing wrong."
For the record, I cried before my colonoscopy many times. Was I afraid? Was I in a lot of pain? No and no. I was HUNGRY. I was waiting for them to put me to sleep and tears are running down my cheeks. The nurses were great and worked to console me letting me know that there is nothing to fear and it will all be over soon. I just looked at them through my teary eyes and said "I'm not afraid, I'm hungry. I just really want to eat." I'm not sure they quite knew what to do with me.
Think about it! I couldn't eat for 24 hours. ME. Or drink Dr. Pepper. ME!! I had a lot of juices to choke down the solution to "clear me out." I got so physically sick of sweet drinks that I started sucking on the cajun sweet pickles that my mom makes at Christmas time for some spice. Sad, I know.
Recent doctor visit revealed that I would benefit from some IV antibiotics, but it wasn't an emergency. I made a deal that she let me wait 6 weeks and be reevaluated because I was beginning playing soccer again and running once more. I was making a serious effort to improve my cardiorespiratory health and I wanted to see if that would help before we made any decision to send me to the hospital. I've been running every day since.
My running partner, aka the boyfriend, has been great. When our work schedules allow us to run together, he meets me at the gym closest to me and we run. He gives me the push to keep going without pushing me to a breaking point. I've also lost several pounds over the last few months and he's declared that I'm going to eat as much as he does, if not more. We'll see how that works out!
Speaking of the boyfriend, all is well in that department. ("well" is the understatement of the century, actually.) We're extremely happy and things just make sense. It's nice when your best friend is also your boyfriend. :)
Speaking of friends, one of them (aka Emmons) is turning 21 in August and someone in her family got the great idea to have a serious celebration... IN VEGAS. Come late August I will be flying out with her family for a 21st birthday party in Sin City. I'm sure there's nothing that can go wrong.. haha!
Two of my other close friends are getting married in November.. on the same day... in different cities! Bummer! I'm very excited for them both and can't wait to celebrate with them!
On that note, I think that's all the updates I've got so far. Well, I'm sure there are plenty more, but that's all I've got for today. One more reason I don't blog, before I forget: I spend all day at work at a computer. I really don't want to get on my home computer once I leave. It's just not appealing to me.
Ciao.
Showing posts with label exercise. Show all posts
Showing posts with label exercise. Show all posts
Thursday, March 7, 2013
Saturday, December 25, 2010
A Christmas gift to myself
Merry Christmas again everyone!! :]
I hope your Christmas was just as fantastic as mine was, filled with the story of Christ, quality time with family and of course, great food.
On a less happy note...
Warning, brutal honesty up ahead. To keep your Christmas cheer intact, read later!
So, I'm frustrated with myself. I fluctuate on being compliant and not. Current status: bad Annie. But my Christmas present to myself is compliance.
It's a gift to myself because if I'm compliant now, I'll still have time for things later in life when I'll really want to still be around. And also for the now. Right now, I sound terrible, coughing too often for my personal comfort. I can barely play soccer. I can hardly sing. I can't lie down without people asking if I'm ok because I'm coughing so much. NOT OK WITH ME. Yet, I did this to myself. So, with roughly 20 days until my next doctor's appointment, I'm challenging myself to be 100% compliant. Not only in meds but also in fitness. I may not run 2 miles every day (although I am still really proud of myself from that day in Dallas), I need to run some and walk some. Mom also got Zumba for the Wii for Christmas and I tried it out with her today. It's really hard, but has great potential to be a serious workout. In an extension of my compliance, I've also upped my Vest time. Instead of 15 minutes once a day (which is surprisingly low), I'm doing 30 minutes at night and 15 minutes in the morning. This is not a suggestion, but an executive decision on my part to change my routine. It's set in stone as far as my compliance goes.
This morning was rough with the pills. Breakfast took a little longer than I anticipated to be ready, so I felt very sick for a few minutes with a handful of pills on an empty stomach. With a few crackers, it was remedied.
I can't decide whether this is going to be difficult or not. So far, it's not really been that hard, but it's been a mind of matter situation. It's so much easier to pop a select few pills and walk away than it is to wait and take them all, but I am getting my mind over the urge to just walk away. So far, so good. I've been 100% compliant so far and I fully intend to keep it that way. I've thought about getting someone to keep me accountable, but knowing myself pretty well (ha!), I know that the person gently reminding me or asking if I've taken everything, every day, would drive me up a wall and I would probably give up and be angry/frustrated about it. So it's just me holding myself accountable to myself and to this blog and to my own personal records.
I can do this.
My goal is to extend the compliant nature past my doctor's appointment of course, and hoping that by that time, things will simply be habit once again and I won't have to do a daily battle with myself!
Finishing up my 30 minutes of evening Vest, about do to my evening Cayston, then making myself a water, taking my evening pills, and then I'm off to bed. I've had a very, Merry Christmas and I hope you have too!
-Annie
I hope your Christmas was just as fantastic as mine was, filled with the story of Christ, quality time with family and of course, great food.
On a less happy note...
Warning, brutal honesty up ahead. To keep your Christmas cheer intact, read later!
So, I'm frustrated with myself. I fluctuate on being compliant and not. Current status: bad Annie. But my Christmas present to myself is compliance.
It's a gift to myself because if I'm compliant now, I'll still have time for things later in life when I'll really want to still be around. And also for the now. Right now, I sound terrible, coughing too often for my personal comfort. I can barely play soccer. I can hardly sing. I can't lie down without people asking if I'm ok because I'm coughing so much. NOT OK WITH ME. Yet, I did this to myself. So, with roughly 20 days until my next doctor's appointment, I'm challenging myself to be 100% compliant. Not only in meds but also in fitness. I may not run 2 miles every day (although I am still really proud of myself from that day in Dallas), I need to run some and walk some. Mom also got Zumba for the Wii for Christmas and I tried it out with her today. It's really hard, but has great potential to be a serious workout. In an extension of my compliance, I've also upped my Vest time. Instead of 15 minutes once a day (which is surprisingly low), I'm doing 30 minutes at night and 15 minutes in the morning. This is not a suggestion, but an executive decision on my part to change my routine. It's set in stone as far as my compliance goes.
This morning was rough with the pills. Breakfast took a little longer than I anticipated to be ready, so I felt very sick for a few minutes with a handful of pills on an empty stomach. With a few crackers, it was remedied.
I can't decide whether this is going to be difficult or not. So far, it's not really been that hard, but it's been a mind of matter situation. It's so much easier to pop a select few pills and walk away than it is to wait and take them all, but I am getting my mind over the urge to just walk away. So far, so good. I've been 100% compliant so far and I fully intend to keep it that way. I've thought about getting someone to keep me accountable, but knowing myself pretty well (ha!), I know that the person gently reminding me or asking if I've taken everything, every day, would drive me up a wall and I would probably give up and be angry/frustrated about it. So it's just me holding myself accountable to myself and to this blog and to my own personal records.
I can do this.
My goal is to extend the compliant nature past my doctor's appointment of course, and hoping that by that time, things will simply be habit once again and I won't have to do a daily battle with myself!
Finishing up my 30 minutes of evening Vest, about do to my evening Cayston, then making myself a water, taking my evening pills, and then I'm off to bed. I've had a very, Merry Christmas and I hope you have too!
-Annie
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