Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Luke 12:25-26
Showing posts with label Great Strides. Show all posts
Showing posts with label Great Strides. Show all posts

Wednesday, December 8, 2010

I'm Published!


I had been asked by someone who works at the Sigma Kappa Triangle (my sorority's national magazine) to write an article about having CF and how being a Sigma Kappa has helped! The Autumn edition of the magazine came out today and my article was on page 7!
Somebody to Lean On
Sigma Kappa with chronic illness finds support in sisters

Being a college student can be hard sometimes. Being a college student with a serious illness makes things even more difficult. At birth, I was diagnosed with a disease called cystic fibrosis (CF), a genetic life-shortening disease that makes simple body processes, like breathing or digesting food, more complicated. However, with many advancements made in technology and medicine, the quality and length of life for people with this disease has dramatically improved as I’ve gotten older. Now, just shy of 20, I’m away at college and thriving in all aspects of life.

Life with CF can be frustrating at times. Between the number of pills, the breathing treatments, and chest percussion therapy, a lot of time and thought goes into maintaining my health. Because of the rigorous daily routine, going to college is a challenge for people with CF. We must have excellent time management skills to be able to balance school, health, and personal life. Our personal choices are based around our health instead of what might be popular. And while making friends hasn’t been affected, letting those new friends behind my protective barrier and allowing them to see this vulnerable side of me is hard to do. I went to a college away from some of my closest friends, a decision that left me outside my comfort zone. I was nervous about branching out and meeting new people, afraid of their reaction when they learned of my illness.

At the suggestion of my family, and after some persuading, I decided to go through formal recruitment. Did I think I would actually join a sorority? Not a chance. I did not think of myself as a “sorority girl.” However, once preference day came, I knew my heart was already with Sigma Kappa. After just in the few days of recruitment, I could tell that these girls were new friends I could trust.

With these newfound sisters also came a newfound fear: telling them my biggest secret. I have been closed off my entire life about CF because I never wanted to be labeled. I was an athlete, a singer, a Christian, a friend, a teammate, but never the “sick girl.” I was determined to not let CF label me in college, especially not with my new sisters. The last thing I wanted was for them to look at me and see “cystic fibrosis.”

At the end of my freshman year, I wrote a letter to our executive council asking if we could take on cystic fibrosis as a local philanthropy -- my first step at trusting my sisters with my secret. Our President, Sarah Carroll, said that my sisters would support me in any fundraising I did. At the start of my sophomore year, I knew the Great Strides 5K for cystic fibrosis was coming up soon and I decided it was time to open up and trust my sisters with the thing I’m most afraid of sharing. I stood up in chapter meeting to explain the race and why it was important to me personally. After my announcement, there was only positive support. My sisters in Sigma Kappa stayed true to me, as I knew in my heart they always would. The day of the race, my sisters drove an hour to walk with and support me. Those that couldn’t come donated money to the CF Foundation. My sisters in Sigma Kappa have just started a long journey with me in dealing with my life-long battle with CF, but I know that when things get tough, my sisters will always be there. I couldn’t do it without them.


Friday, October 15, 2010

I haven't forgotten...

So my lull in blogging is due to getting the stomach bug right after the Great Strides walk, going to the local Urgent Care clinic to get a phenergan shot, and a topical prescription, and then trying to make up important school things (like my English midterm!) on top of Homecoming week this week and preparing for big sis/lil sis week next week!!

The race was a huge success, as I mentioned before in my last post. I really appreciated everyone who came out to support me (including Alissa who drove several hours to get there!) and the amount of money that was raised was incredible. I'm still floored. $29,000. Wow. Just... wow.

Nothing else to really report on right now I guess. I've been given another incredible opportunity to tell more people about CF, but I won't actually tell about it until after the fact. Hee hee. :]

My birthday is coming up! I'll be 20!

Umm... other than that, I can't really think of anything to report. I'm back on Cayston, I'm on bactrum because I had a cold (prevent a second infection), and otherwise feeling much, MUCH, better than I had been over the last week or two.

Ok, I'm starving. Time to EAT!

-Annie

Saturday, October 9, 2010

Great Strides walk- part1


The walk was a successful event!! I'm so happy! It was successful personally because 20+ of my sorority sisters came out to support me, along with some other friends from high school! As an event, we raised.... prepare yourself.... $29,000!!!!! And there were only about 150 people there. But we had raised that much money!

I would love to go into detail about the event, but my nephew is at my knees and pressing buttons on the laptop wanting me to play with him. I can't resist. Here's a picture of the race before I go. More details later!


-Annie
P.S.: this is my 200th post!!

Sunday, October 3, 2010

My lungs...

I have never felt pain like this. It's not that it's unbearable, but it's just that it's never happened to me before. I've been absent-mindedly trying to pull my sternum forward with my hands. Literally. I will not think about, but catch myself trying to grab my sternum. I feel like my ribs and my sternum and pressing down on my lungs and it's making it hurt when I cough, swallow, and sometimes breathe. I really don't know what's going on, but since I go to the doctor in a few days, I'm sure they can tell me. This whole thing started this morning. I felt terrible, but I thought maybe it was just the start of a cold. However, I never got a cold. Just this pain in my lungs. NOT COOL.

I'm really becoming more anxious that I'll be sent to The Hole (aka hospital). I can tell I've lost weight because rings don't fit right and my jeans are too loose. And now my cough is getting worse, I got winded walking up one flight of stairs in the cold this evening, and now lung pain. I'm done for. There is no way I'm getting out of this Hole sentence. However, and I say this with emphasis: I DO NOT HAVE TIME RIGHT NOW TO STOP MY LIFE FOR A PICC LINE. I'm on step-show, I have a heart sis and then soon is Big sis/Lil sis week, and Homecoming week is coming up (which is super busy!), and an English midterm, and classes in general that are hard to do outside of the class itself (like anatomy LAB).... and oh yeah, MY 20th BIRTHDAY. I really really can't stop everything right now. The CF Great Strides walk is this weekend and since I'm the one that rallied everyone together I figure I should probably be there to walk it with them. Official verdict will be in 2 days. Pray pray PRAY this is an easy, non-hospitable, fix. Needless to say, I'm freaking out. No tears yet, but they will come. Either when they sentence me to The Hole or when they let me squeak by. I'll cry either way.

I have happier news, and those who are FB friends with me have seen it, but I don't want to dampen that news with my lung pain and fears. So it's another post for another day.

-Annie

Saturday, October 2, 2010

My life is always busy....

....and I wouldn't have it any other way! But that's why I'm slow to update. Current status: my hair is wet from my quick shower and I have step-show practice in 25 minutes.

I slept for 15 hours last night. That's insane. My body literally shut off at 7pm last night. I couldn't keep my eyes open. I crawled into bed and the battle was over. Gracious.

Doctor's appointment this Tuesday. *anxious*

Ummm I can't think what else to type at the moment. Super busy with the new Sigmas but really enjoying my time hanging with them and my other sisters.

Morgan (real life fake sister) and her friend Celeste came and toured the campus and then hung out with me after I got out of class. Morgan cooked for me (again). :] Then I passed out. Maybe she drugged me or something....... just kidding.

Ok, I need to get ready for practice.

Bye!
-Annie

ps. Lots of people from Sigma have signed up to be with me for the Great Strides walk this next weekend. :]

Monday, September 27, 2010

Sigma Kappa sisters are REAL.


These two pictures are of my pledge class in Sigma Kappa. The first is us being crazy on bid day and the second is from a formal photoshoot we did around town (photo #2 credit to Britney and Brandi Smith, Sigma Kappa alums).

I never thought I would be a part of something so amazing, but yet here I am. This sorority has gone above and beyond my expectations about what a group of women could be. I wouldn't be anything else but a Sigma Kappa for the world.

That being said, I made my little announcement about the Great Strides walk at meeting last night. I was shaking. My heart was pounding. It felt like the room was 130 degrees, even though I was cold just a few minutes prior. I made my announcement (with the help of notes!) and even included WHY this walk was so important to me, even if only so briefly. Nobody scooted away from me like I was contagious. There was no sudden gasp that resounded through the quiet meeting room. No whispers once I was finished talking. Nobody stared at me like I was now something to be feared/studied/avoided. The meeting simply continued, and a friend close to me both physically and at heart leaned in and told me I did a good job. She knew I was terrified. Before the next announcement in the meeting, a comment was made by our Vice President: "support your sisters". The next announcement was from another close friend. It was about supporting me [and the walk] monetarily if they were unable to go with me. These girls went above and beyond what I had expected as a result. I tend to fear the worst, and was more than pleasantly surprised when none of my fears came true. Immediately girls leaned over to me and told me that they would be there for sure. Others came to me after meeting and wanted to know how they could help if they were unable to come. The sisterhood that Sigma talks about is REAL. These girls really and truly care about me, my well-being, and want to support me in everything I do. I thank God for my sisters in Sigma Kappa.

-Andrea

Sunday, September 26, 2010

A little of this... a little of that...


My mind has been going 1000 different ways at once all week. I still don't have much of anything to post about to take up a whole post, so I'll carry on about a few different things. I'll even number them for pure entertainment.







  1. Guys rush is over!! No more late nights cooking food in mass quantities. Thank goodness.
  2. I found out I cook a mean sheep dip. Don't google "sheep dip" because what I cooked is not what you will find. What sheep dip is in my family = meaty cheese dip in everyone else's. No one is completely sure where our term for it came, but it still stands.
  3. I'm tired of people pointing out that I cough. Thanks, but I'm pretty well aware of it. Mind your own business.
  4. Tonight is Sunday Night Soccer again! My legs hurt just thinking about it. It's gonna be fun, but I still won't be able to hang with the guys for very long. I get so winded...
  5. Doctor's appointment quickly approaching... really nervous about that. I know I always say I have a bad feeling about the PFT results, but I do this time too. aaaahhhhhhhh!
  6. I studied way too long for a test I didn't do nearly as good on as I had hoped. *frustrated*
  7. Went back to my college-town church today and was reminded of how much I love it!
  8. Great Strides is Oct. 9. This evening at meeting I'm going to get up the courage to ask my sorority to walk it with me. I'm terrified.

That's all for now.
-Annie