I had a very frustrating night last night. At 6:45 Saturday morning, I awoke doing my absolute best to ignore "the cough." You know, the cough that means I'm coughing up copious amounts of blood. Maybe, in my delirious state, if I ignore it, it will go away. WRONG. But the real kicker in this situation is that I'm not home. I'm with family in Austin, TX, sleeping on a couch. Waking up scared, sick, and still drowsy, I'm not thinking straight. Not to mention I'm really nauseated from coughing so much/coughing up blood/swallowing more blood because I have no where to spit it out. I start an albuterol and realize that I am going to be sick. Luckily (I think) I wasn't, but and I finally finish my treatment and fall back asleep. However, the most frustrating thing about this situation is that I'm NOT on antibiotics, which in the past has been the only time this hemoptysis has occurred. And I took my Vit. K that day. So now I'm actually clueless as to the cause of this, and that scares me. Now I'm planning ahead though. Along with my nightly glass of water, I'm keeping an empty cup next to me in case this happens again tonight... I really hope not.

My doctor's appointment is in 3 days, and to be perfectly honest, I feel awful. Just terrible. I'm afraid I haven't improved enough to my doctor's satisfaction and I'll be sent to the Hole for the first time in almost 2.5 years. I've actually come to terms with it, really. Worst case, I'm right and I'm not shocked. Best case, I'm wrong and I'm thrilled I don't have to go!! My only real hope is that I'm testing out hypertonic saline for the first time at my appointment so maybe they'll let me slide again, but I think I've slide by long enough. Tuesday will be the test. Obviously, I'll let you know the results.

On a lighter note, I'm getting some good quality time with my family this weekend. I haven't seen this brother/fam since our May crawfish boil so it was long overdue. And my niece is growing so quickly!

OH! I'm done with summer school!!! I couldn't be happier to have two more classes out of the way. And with one of those classes came the idea of a different future career than originally planned, and it's worth looking into! I may be doing grad school instead of PT school! May. I don't know what the future holds yet, obviously, but I like having serious options. We shall see!

My family lately has spent a lot of time watching old home videos. I've been watching videos from when my oldest brother was crawling to when I was around 9 years old and everything in between! Birthdays, holidays, sports, and then just those fun times playing as siblings at the house. It really was fun seeing people/pets who have passed away that I miss dearly and watching the memories I don't have, or times when I wasn't even alive! It really has been fun watching these. Thank goodness for VHS-to-DVD converters!!

I guess I should call it a night here soon. I'll keep you updated on my doctor adventures on Tuesday.

-Andrea

Greetings, from the other side of finals week

The quarter is over and break has begun... THANK GOODNESS. That was a rough quarter, to say the least. But it's over now and it's time to relax for a while, eat lots of good food, spend time with family and friends, and then, once again, start thinking about Winter Quarter.

Health update!

I've still been coughing a good bit (I think it's related to my wacky schedule during finals week) but NO BLOOD!! I can't even tell you how excited this makes me. I still check each time I have a coughing fit, just to be sure, but so far nothing. Yay!

On the other hand, my gut it furious at me. This happens from time-to-time and is where most of my CF problems have occurred. It will pass in due time. Amusingly enough, when my colon makes really funny noises, it freaks my dog out because she doesn't know where the sounds are coming from. Hee hee

Speaking of my puppy, she's been very, VERY clingy lately (I'm talking thunderstorm clingy) and I think it's because she's afraid I'll leave again. The last few times I've been home during college, I've either not stayed the night or only stayed about 24 hours. Not long enough for my dog to be happy with it apparently. She's been enjoyed curling up in my bed with me, I can tell. She's there now waiting on me. Well, she's already napped on my stomach, curled in my knees, and on my feet keeping them warm during the day. Clingy clingy. But I love it. :]

Time to rest up for a Saturday or relaxation. Doing nothing is hard sometimes! Ahh, the joys of break!

-Annie

To celebrate the week of thanksgiving, look for my upcoming post on things I'm thankful for!

Doctor's Appointment recap!

PFTs: same as my appointment last month

Weight: same as my appointment last month

Amount of blood I'm coughing up each time it happens: less than the time before

My doctor did not see that any action needed to be taken! That whatever the problem was, it was being fixed already. I will stay on the upped dose of Vit. K until the end of the year.

This is fantastic news!!!! Everybody was very confident in me (including myself) that I would get a great report and ta-da! I did!

Thank you for your concerns/prayers/thoughts everyone. I needed to go in to see my doctor and I'm glad I did.

:]

-Andrea

Hemoptysis update #4

I talked to my doctor again yesterday. Here's the game plan:

I go back to clinic a week from today ( Nov. 1) and get my PFTs checked out. We'll see where to go from there (IVs, etc.).

If I cough up a cup of blood or more in one setting, I drive to the ER back home.

I'm back on the Vest.

So far, no more blood since my last mention of it.

I will update as things come up

-Annie

ps- Birthday Week!

Hemoptysis update #3

"Glad that's over"

What was I missing? Oh yeah. Knock on wood.

Too late.

I started coughing up blood again this evening. No where near the volumes from before, thankfully, but enough to be concerned about. Calling the doctor Monday morning. Taking myself back off the Vest...

This is frustrating. And scary. I really don't like this. I'm more afraid of what this means and what might have to be done about it than the blood itself. I got over that pretty quickly. But because it's not normal, I know I can't keep doing it. I'm just scared, that's all.

Sorry for the brutal honesty.

-Annie

Hemoptysis update #2

Alright guys, unknown cystic called me out. I've been MIA about my health updates.

I called my clinic and talked to my doctor. She was glad to hear I put myself back on Vit. K because she would have put me back on it too. She upped my dosage to once a day while I'm on the bactrum (and I still have several days left). I got the ultimatum that if, in 24 hours, I was still coughing up blood, I was to drive home and go see my nurse practitioner (because the rest of my clinic was at the conference!) and get checked out. I was to not exercise or do the Vest, or do anything to stimulate coughing, aside from just my normal day-to-day cough. Otherwise, nothing else was changed.

I prayed hard and waiting for the 24 hours to pass: no blood! I think my lungs got the message that bleeding is not ok and stopped. :] I just started back on the Vest last night, since the hemoptysis had stopped, but I'm being cautious with it. I don't want to start it back up again.

My doctor said it was either just the antibiotics or I actually had a bug of some sort. If I had any bug, I'm guessing the bactrum and Cayston took care of it. But really, I think it was just my lack of Vit. K in my body.

Hooray! Coughing up blood is NOT fun. Glad that's over.

Sorry for the late update, Unknown Cystic. I've been insanely busy with Sigma stuff and finishing catching up on homework from when I missed.

-Annie

Hemoptysis update

Yet another day coughing up some blood. This is delightful... *blatant sarcasm*. I did get it up and out though, which is good except for I kinda threw up a little too because it made me gag.

Here's the plan: No Vest while I'm still doing this, Dad's bringing me some Vitamin K (at the suggestion of Fatboy) because I was taken off of it a while back. I'm on Cayston and bactrum already, so any infection will be taken care of, hopefully. I'm also calling my clinic tomorrow to talk to my doctor and to see what the official game plan will be.

In the mean time, I have homework to finish and a few more preparations for Big sis/Lil sis week starting tomorrow! Let the to-do lists begin!

-Annie

Hemoptysis

So randomly and often spread out, I have had this liquidy, funny tasting, and hacky cough that I never understood. My gag reflex kept anything from coming up and out (as usual) so I never really understood what it was. Until Saturday morning.

My coughing wakes me up at 7:40am this Saturday morning. I'm doing that cough, the one I hate the most, where it feels like I'm drowning and I can't make it stop. I feel like I'm going to throw up all this liquid, not even positive what it is. I cough a ton, open my mouth, put my finger on my tongue and look at it.... blood. And not just a fleck or too. But a lot. I look at my hand more closely and find a lot more blood. My heart starts racing. I get up to do albuterol (not sure what else to do to make this stop!) and get on RunSickboyRun because I remember him saying something about coughing up blood. Sure enough, his description of the amount of blood (tbsp to cups) and the coughing fits. I have been having bouts of hemoptysis for years and never knew it.

I've had two recent bouts, both pretty bad, really close together. I'm hoping that this is just a coincidence, or maybe related to the stomach bug I had, but nothing serious. I remember seeing, while I'm throwing up for several hours, a larger amount of blood in what I was bringing up than ever before. Sometimes when I would cough, I would see a fleck or two, not a big deal. These are not flecks. These spells will fill my mouth of blood. However, for some terrible reason, I can't do anything but swallow it. So I am swallowing a large amount of blood and then I feel terrible for a little while! But if I get it out, I will start throwing up too, and then get REALLY freaked out and still feel terrible. Ugh.

Unless this continues frequently, I'm not making a big deal about it. However, I am scared to use my Vest on days when these happen. Should I?

-Andrea